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Resources. Research. Results.

What Encephalitis Is and How We’re Helping

Encephalitis, an inflammation of the brain, affects about 20,000 Americans annually.
Those who survive its assault are often left with permanent brain injury, requiring expert medical treatment and skilled professional rehabilitation.
Survivors’ residual symptoms are varied, life-altering and costly, leaving them and their loved ones changed forever.

Encephalitis411’s mission is to improve the quality of life for those impacted by encephalitis. We have a 3-pronged approach to achieve this through research, awareness and advocacy. Physicians across multiple disciplines at major institutions back this nonprofit, to provide an unmet need for clinicians and patients in the U.S.
Encephalitis411 seeks to increase awareness and advance research of this life-threatening, life-altering brain disorder.

This 501(c)(3) organization also aims to advocate for those impacted by encephalitis, resulting in early diagnosis and best possible treatment outcomes. We are working closely with medical professionals from highly esteemed medical institutions such as Johns Hopkins, Kaiser Permanente, the National Institutes of Health, Cleveland Clinic, Vanderbilt University Medical Center, Mayo Clinic, Centers for Disease Control and Prevention, and Brown University. Together, we aim to improve the ability for clinicians to be equipped to diagnose earlier, to offer the best possible treatment outcomes, and to provide hope.

Connect

Looking to connect with others impacted by encephalitis? Visit the Encephalitis411 forum on Inspire by clicking here and see a wealth of historical information on questions about symptoms, treatment, diagnosis, or insurance and a host of other topics.

Or post your own and interact with others dealing with the aftermath of encephalitis. If you are a Facebook user, you can see events, notes of inspiration, and interaction by clicking here.

Get Involved!

Are you passionate about what we’re doing? Let us know!
We are always looking for volunteers to help us make our vision a reality. We’ll help you find a way to volunteer that best suits you.
We’re excited to have you join the team!

Thanks!

Whether you are able to help through monetary donations, volunteering your time, or spreading our mission through word-of-mouth, thank you.
We couldn’t accomplish our goals without the help of supporters like you.

GIVING HOPE

Research

One of our main goals is to encourage and support funding for prevention, diagnostics, treatment and rehabilitation for better outcomes for this devastating illness.

Advocacy

We want to encourage and support you throughout your journey, working together through researchers, medical providers, patients, caregivers and insurers, to get the best possible results for you.

Awareness

Seeing the wonders of a sunrise or sunset can be difficult when no one understands your “invisible” illness. We aspire to provide resources, information, education, connections and support to lessen the burden and increase awareness.