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UPCOMING EVENTS

World Encephalitis Day – February 22, 2019 –  weekend events

Encephalitis411 is pleased to announce an entire weekend of activities to recognize World Encephalitis Day this year.
Join us for this exciting weekend of events that provide education about encephalitis.

Friday, 02/22 – World Encephalitis Day

  • Webcast series  –  Info about accessing the webinars coming soon!
    Email your questions to sunny@encephalitis411.org or text to toll-free 1.833.411.3350.
    Send your questions in advance if you’d like and we’ll try to weave them into the webinar.
    Topics will include:
    • What I Wish I’d Known When Thrown into the Caregiver Role – with Mary Karlovec and Rick Station
      • Taking care of yourself while taking care of your loved one
    • Navigating the Patient/Doctor Experience – with Dr. Arun Venkatesan, Johns Hopkins neurologist and Jennifer Stevens
      • Explore the minds of the patient and physician as encephalitis unfolds; learn about the knowns and unknowns of encephalitis
    • The Realities of Surviving Encephalitis  – with Jane Myers and Jacob Savoie
      • What survivors want you to know about their journey; “Please don’t minimize my experience!”
    • Encepha-what?? – with board members Dr. Carol Glaser, DVM, MPVM, MD at Kaiser Permanente, Dr. Karen Bloch, MD at Vanderbilt Medical Center, and Becky Dennis, author and survivor
    • Navigating Support and Therapy Services After Encephalitis – with Kristi Kelley, MA, CCC-SLP with Baylor Scott & White Institute for Rehab and Becky Dennis, Encephalitis411 board president
      • Finding the right therapies and rehabilitation program is tricky for any brain injury survivor. It’s even harder when clinicians may have limited experience with your illness. Learn about critical support services for encephalitis survivors.
  • Education series – Health Sciences Technology group of Hot Springs, AR  (part of National Park College)
  • Turn Dallas skyline red – several downtown buildings will turn red to observe World Encephalitis Day

Saturday, 02/23

  • Survivor/caregiver meeting in Plano, TX, 1:30 to 4:30 at LifePoint Church at 4501 Hedgcoxe Road in Plano. RSVP today! A few seats still left!
    • Speakers:
      • Pate Rehabilitation – David Salisbury, Psy.D., ABPP, Jennifer Garcia, Supportive Living program manager and Allie Johnson, PT, DPT, CBIS, physical therapist
      • Center for BrainHealth – Molly Keebler, M.S., CCC/SLP, Head of Community Programs
      • Encephalitis411 – Becky Dennis
        Childcare is not provided. Light snacks and water are provided.
        This is not a church-sponsored event, although we thank LifePoint Plano for providing a quiet, safe, secure and free environment.
        Must RSVP to becky@encephalitis411.org or text your information to 1.833.411.3350 

 

Autoimmune Encephalitis Symposium – April 6, 2019
Dr. Arun Venkatesan, Co-Keynote Speaker

This educational symposium has been organized by several autoimmune encephalitis not-for-profit organizations.

Leading medical professionals will provide professionals and medical students with current information intended to enhance working relationships between neurology and psychiatry (and other specialties), so as to ensure prompt diagnosis and treatment for patients with autoimmune encephalitis.

https://www.aesymposium.com

PAST EVENTS

Three Medical Professionals to Participate in September 22, 2018 Dallas-Area Survivor and Caregiver Meeting

Many thanks to Dallas-area medical experts for participating in Encephalitis411’s free latest survivor and caregiver meeting.
Stephen Chock, Ph.D. – neurocognitive focus on brain injury treatment
David Salisbury, Psy.D, ABPP-CN – neuropsychologist with focus on rehab at Pate Rehabilitation Leah Bell, OTR/L, CLVT, CBIS – certified therapist and vision rehab specialist at Pate Rehabilitation
In an effort to change the encephalitis landscape, Encephalitis411 hosts local meetings for survivors and caregivers impacted by encephalitis, regardless of cause.
The organization welcomes anyone impacted to attend on Saturday, September 22 at LifePoint Church, at 4501 Hedgcoxe Road in Plano, from 2:00-4:30pm. We will meet in the Connection Room, which is near the baptismal at the southeast corner of the building.
(This is closest to the intersection of Hedgcoxe and Preston Meadow Drive.)
The meeting will be facilitated by Encephalitis411 board president, Becky Dennis.
The intent of the meeting is simply to ask questions of medical experts, exchange coping tips, explore treatment possibilities and talk about what’s top of mind.
Topics typically vary including rehabilitation, facing friends/family unfamiliar with encephalitis, referrals and cognitive treatments.
RSVP to becky@encephalitis411.org or 833-411-3350
Childcare is not provided.  Light snacks and water are provided.
This is not a church-sponsored event, although we thank LifePoint Plano to provide a quiet, safe, secure and free environment.

FACES conference – May 11-13, 2018

Hosted by Encephalitis Global, this annual conference for Friends And Caregivers, Encephalitis Survivors (FACES), will be held May 11-13 in Seattle, WA. Becky Dennis, board president of Encephalitis411.org and author of Brain Wreck, will speak at the Encephalitis Global FACES event for the sixth consecutive year.
She will be sharing the mission for Encephalitis411.org with caregivers and patients, including the near-term and long-term vision.
She will also discuss navigating the medical system with tips for advocating for oneself.
As someone who likes to help others improve along the encephalitis journey, Becky will make this an interactive discussion to give attendees plenty of opportunity for Q&A.
Get details at https://faces-2018-encephalitis-conference.eventbrite.com

Encephalitis Survivors and Caregivers meeting – Dallas Area, March 24, 2018

In an effort to change the encephalitis landscape, Encephalitis411.org is hosting local meetings for survivors and caregivers impacted by encephalitis. The organization welcomes anyone impacted to attend on Saturday, March 24 at LifePoint Church, at 4501 Hedgcoxe Road in Plano, from 2:00-4:30pm.
From Stephen Chock, Ph.D., local neuropsychologist, psychologist, and certified brain injury specialist who will be attending the March 24 event, “There are many people in our community struggling with the aftermath of encephalitis, so it’s great that we’re getting more local support. I’ve worked with those impacted, and there is hope to offer in their recovery journey.”
The meeting will be facilitated by two survivors, Encephalitis411.org board members, Becky Dennis and Bob Morris. Joining them in this casual setting are Stephen Chock, PhD., as well as Stefanie McNeal, also local DPT and physical therapist.
The intent of the meeting is simply to share coping mechanisms, meds that work, tests or treatments that help, opportunity to vent a little if needed, share a funny story, etc.
Topics will vary including rehabilitation, facing friends/family unfamiliar with encephalitis, referrals and cognitive treatments..
“There are many efforts we are undertaking to improve the diagnostics, treatment and rehabilitation for encephalitis patients,” said Dr. Arun Venkatesan, Encephalitis411.org board member and Director of the Johns Hopkins Encephalitis Center. “We recognize the need for further research to improve outcomes in this important patient population.”
RSVP to becky@encephalitis411.org or 833-411-3350
https://communityimpact.com/ci-events/dallas-fort-worth/plano/west-nile-encephalitis-support-meeting-2/
Childcare is not provided.  Drinks/light snacks will be provided.
Although LifePoint Church is not sponsoring this event, they have been kind enough to provide a safe, quiet and free place for a meaningful meeting.

World Encephalitis Day – February 22, 2018

Initiated by the Encephalitis Society of the UK, this date is set aside each year to raise awareness of this brain disorder.
Encephalitis411.org was founded as a U.S. based nonprofit, to also raise awareness, and to directly impact those who live in the U.S.
This year Encephalitis411 encourages all survivors, caregivers, advocates, and medical professionals to wear RED on February 22nd, and to talk about encephalitis.
If you find yourself with an OTE (“opportunity to educate”), feel free to point them to our website. They can then contact us for further information.
This photo is the Dallas Skyline, lit up in red,  to increase awareness, and highlight the need for rapid diagnosis, comprehensive treatment, and rehabilitation protocols for those who survive, and honoring those who have died.

Board Retreat in Dallas – February 2018

 L to R: BECKY DENNIS, President, SUNNY STEPHENS, Treasurer, BOB MORRIS, Vice-President, and ANGELA MARTIN, Advocate
Board members met in Dallas for a weekend board retreat in early February.