The 7th Annual Walk to Cure Encephalitis – RESCHEDULED
UPDATE: Due to the fires in California, the walk has been rescheduled.
“We are rescheduling the Walk to Cure Encephalitis due to the fires and poor air quality. We will reschedule in March. Thank you for your continued support. Love Suzanne and all who love Nicole Drpepperlover Seiler.”
Our friend and long-time supporter, Suzanne Spector, is hosting an annual fundraiser with 100% of the funds supporting the mission of Encephalitis411.
In 2011 Suzanne lost her 12 year old daughter, Nicole, to encephalitis. Click here to read her story. https://encephalitis411.org/donor-stories
We’re honored to work beside Suzanne, and her family and friends, and we encourage all those in the area to get out and walk, and make a difference.
Wear your good walking shoes, and join in the fun, for a good cause!
WHO: Suzanne Spector
WHAT: 7th Annual Walk to Cure Encephalitis
WHEN: 11/11/18 10 am-12 pm PST
WHERE: Meet at Lake Balboa in Encino, CA
WHY: In honor of Nicole Seiler, and anyone dealing with the aftermath of encephalitis
You don’t have to be there in person to help in the fundraising.
You can walk in your own community, invite friends to join you for the cause, send us your participation photos, and donate at the GoFundMe page, https://www.gofundme.com/the-walk-to-cure-encephalitis or here on our site, on our HOME page.
Autoimmune Encephalitis Symposium – April 6, 2019
Dr. Arun Venkatesan, Co-Keynote Speaker
This educational symposium has been organized by several autoimmune encephalitis not-for-profit organizations.
Leading medical professionals will provide professionals and medical students with current information intended to enhance working relationships between neurology and psychiatry (and other specialties), so as to ensure prompt diagnosis and treatment for patients with autoimmune encephalitis.
Three Medical Professionals to Participate in September 22 Dallas-Area Survivor and Caregiver Meeting
Stephen Chock, Ph.D. – neurocognitive focus on brain injury treatment
David Salisbury, Psy.D, ABPP-CN – neuropsychologist with focus on rehab at Pate Rehabilitation Leah Bell, OTR/L, CLVT, CBIS – certified therapist and vision rehab specialist at Pate Rehabilitation
In an effort to change the encephalitis landscape, Encephalitis411 hosts local meetings for survivors and caregivers impacted by encephalitis, regardless of cause.
The organization welcomes anyone impacted to attend on Saturday, September 22 at LifePoint Church, at 4501 Hedgcoxe Road in Plano, from 2:00-4:30pm. We will meet in the Connection Room, which is near the baptismal at the southeast corner of the building.
(This is closest to the intersection of Hedgcoxe and Preston Meadow Drive.)
The meeting will be facilitated by Encephalitis411 board president, Becky Dennis.
The intent of the meeting is simply to ask questions of medical experts, exchange coping tips, explore treatment possibilities and talk about what’s top of mind.
Topics typically vary including rehabilitation, facing friends/family unfamiliar with encephalitis, referrals and cognitive treatments.
RSVP to email@example.com or 833-411-3350
Childcare is not provided. Light snacks and water are provided.
This is not a church-sponsored event, although we thank LifePoint Plano to provide a quiet, safe, secure and free environment.
FACES conference – May 11-13
She will be sharing the mission for Encephalitis411.org with caregivers and patients, including the near-term and long-term vision.
She will also discuss navigating the medical system with tips for advocating for oneself.
As someone who likes to help others improve along the encephalitis journey, Becky will make this an interactive discussion to give attendees plenty of opportunity for Q&A.
Get details at https://faces-2018-encephalitis-conference.eventbrite.com
Encephalitis Survivors and Caregivers meeting – Dallas Area, March 24
From Stephen Chock, Ph.D., local neuropsychologist, psychologist, and certified brain injury specialist who will be attending the March 24 event, “There are many people in our community struggling with the aftermath of encephalitis, so it’s great that we’re getting more local support. I’ve worked with those impacted, and there is hope to offer in their recovery journey.”
The meeting will be facilitated by two survivors, Encephalitis411.org board members, Becky Dennis and Bob Morris. Joining them in this casual setting are Stephen Chock, PhD., as well as Stefanie McNeal, also local DPT and physical therapist.
The intent of the meeting is simply to share coping mechanisms, meds that work, tests or treatments that help, opportunity to vent a little if needed, share a funny story, etc.
Topics will vary including rehabilitation, facing friends/family unfamiliar with encephalitis, referrals and cognitive treatments..
“There are many efforts we are undertaking to improve the diagnostics, treatment and rehabilitation for encephalitis patients,” said Dr. Arun Venkatesan, Encephalitis411.org board member and Director of the Johns Hopkins Encephalitis Center. “We recognize the need for further research to improve outcomes in this important patient population.”
RSVP to firstname.lastname@example.org or 833-411-3350
Childcare is not provided. Drinks/light snacks will be provided.
Although LifePoint Church is not sponsoring this event, they have been kind enough to provide a safe, quiet and free place for a meaningful meeting.
World Encephalitis Day – February 22
Encephalitis411.org was founded as a U.S. based nonprofit, to also raise awareness, and to directly impact those who live in the U.S.
This year Encephalitis411 encourages all survivors, caregivers, advocates, and medical professionals to wear RED on February 22nd, and to talk about encephalitis.
If you find yourself with an OTE (“opportunity to educate”), feel free to point them to our website. They can then contact us for further information.
This photo is the Dallas Skyline, lit up in red, to increase awareness, and highlight the need for rapid diagnosis, comprehensive treatment, and rehabilitation protocols for those who survive, and honoring those who have died.
Board Retreat in Dallas – February 2018
Board members met in Dallas for a weekend board retreat in early February.