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In The News


Bayou Vista, Louisiana Mosquito Pool Positive for St. Louis Encephalitis

St. Mary Parish Government Mosquito Control, through its surveillance program, received a positive mosquito pool for St. Louis encephalitis Friday in the Bayou Vista area.
St. Louis encephalitis is an arbovirus that is transmitted by mosquitoes in nature among birds the same way West Nile virus is transmitted. The primary mosquito vector is the Culex quinquefasciatus and the primary vertebrate host is the house sparrow. SLE is commonly found in urban areas.
This mosquito pool was collected from one of the gravid trap collections in the Bayou Vista area, so in response to this a spray truck will run three consecutive nights in Bayou Vista. The mosquito control crew will also be out doing additional larviciding in areas where water is holding in Bayou Vista.
https://www.stmarynow.com/news-local/bayou-vista-mosquito-pool-positive-st-louis-encephalitis

New DNA test beats others at hunting down germs that inflame the brain, UC study finds
Right now, neurologists don’t have one test that can identify multiple causes of inflammatory neurological diseases such as encephalitis and meningitis. But UC San Francisco researchers say their new DNA test hunted down more of these pathogens than any conventional test did in a newly released study.
Inflammatory neurological diseases are rare, costly to treat, difficult to diagnose and life-threatening.
The pioneering test developed by neurological researchers at UCSF is moving doctors closer to providing patients and their loved ones with the answers they seek. The test uses gene sequencing to identify more causes of these mysterious ailments than any conventional test now being used, according to study released late last week in the New England Journal of Medicine.
https://www.sacbee.com/news/local/health-and-medicine/article231592068.html

Animal Model to Help Study “Brain on Fire” Disease
Scientists have developed an animal model that may provide a path toward improving the diagnosis and treatment of the devastating brain disease, anti-NMDA receptor encephalitis, that was chronicled in the bestselling autobiography “Brain on Fire.” The book, along with a 2017 movie by the same name, traces newspaper reporter Susannah Cahalan’s harrowing descent into the throes of the disease.
The autoimmune disease is triggered by an attack on one of the key neurotransmitter receptors in the brain, the NMDA receptor. The disease is characterized by intellectual changes, severe memory loss, seizures, and even death. The study, published today in the journal Science Translational Medicine, reports an original animal model for this puzzling disease.
https://www.technologynetworks.com/tn/news/animal-model-to-help-study-brain-on-fire-disease-321660

WCU Studies ways to reduce mosquito-borne illnesses
This time of year, Western North Carolina (WCU) sees cases of La Crosse encephalitis caused from mosquito bites, often in children.
The university is studying new prevention techniques using specialized traps.
https://wlos.com/news/local/wcu-studies-ways-to-reduce-mosquito-born-illnesses

Vector borne diseases on rise in India
East Singhbhum is worst hit by Japanese Encephalitis this year.
The SVBDCP has so far tested 457 samples for JE and 25 of them were positive.
https://www.dailypioneer.com/2019/state-editions/vector-borne-diseases-on-rise.html

Swiss Government Recommending Meningoencephalitis Vaccination for 2019
Cases of tick-borne encephalitis in Switzerland reached a record high in 2018 with 377 cases, reported the Federal Office of Public Health (FOPH).
Tick-borne encephalitis virus (TBEV) can cause severe meningoencephalitis.
In response to this negative trend, the FOPH is recommending vaccination against meningoencephalitis throughout Switzerland during 2019.
This Swiss vaccination program is recommended for both adults and children, who are above the age of six, who are living in or staying in Switzerland.
https://www.precisionvaccinations.com/switzerland-reported-377-cases-tick-borne-encephalitis-during-2018

176 Children Died In Bihar, India Due To Acute Encephalitis This Year; 872 Cases Were Reported
In June, Bihar reported hundreds of cases of Acute Encephalitis Syndrome (AES), resulting into deaths of more than 150 children. The outbreak also exposed state’s poor healthcare facilities and apathy towards the condition of children.
As many as 872 cases of Acute Encephalitis Syndrome (AES) were reported in Bihar in the year 2019. Of 872 reported cases, 176 died of the disease, said State Health and Family Welfare Ashwini Kumar Choubey in a reply to a question in Lok Sabha.
The Japanese Encephalitis also claimed one life while 16 cases of it were reported in the state of Bihar.
https://www.indiatimes.com/news/india/176-children-have-already-died-in-bihar-due-to-encephalitis-and-872-new-cases-reported-state-govt-reveals-371186.html

Case of West Nile virus in a horse reported in Boaz, AL
The Alabama Department of Public Health said a horse near the city of Boaz in Marshall County has tested positive for West Nile virus.
It is the first reported case of the year in Alabama. The department says one case of Eastern Equine Encephalitis has also been reported in a horse.
https://www.al.com/news/huntsville/2019/07/case-of-west-nile-virus-reported-in-boaz.html

Japanese encephalitis: Life ‘on hold’ for Sophie Williams
The life of a university lecturer who contracted Japanese encephalitis during field work in China has been “on hold” in a home miles away from her partner.
Dr Sophie Williams, 35, from Bangor, was bitten by a mosquito in 2015 while researching illegal trade in orchids. She collapsed, and was found by her flatmate. Sophie was transferred from a Chinese hospital to Bangkok where she spent weeks in a coma.
One in three people who develop serious symptoms do not survive.
Since returning to the UK, Sophie has spent time in various hospitals and now lives in a care home for the elderly in Wrexham. She is on a ventilator and needs 24-hour care.
https://www.bbc.com/news/uk-wales-48528015

Three West Nile Virus cases reported across Oklahoma
Long-lasting complications of WNV disease can include difficulty concentrating, migraine headaches, extreme muscle weakness and tremors, and paralysis of a limb.
https://kfor.com/2019/06/07/three-west-nile-virus-cases-reported-across-oklahoma/

In Dane County, Wisconsin
Dane County resident dies with state’s first case of St. Louis encephalitis since 1981
“…only six human cases reported in the state since 1964 and no outbreaks ever reported.
Like West Nile, St. Louis encephalitis is spread to people through the bite of an infected mosquito. It is not transmitted person to person, the health department said.”
https://madison.com/wsj/news/local/health-med-fit/dane-county-resident-dies-with-state-s-first-case-of/article_83eabd83-b539-50ec-88af-9899d0dead59.html

In Allegan, Michigan
Eastern equine encephalitis is one of the most dangerous mosquito-borne diseases in the U.S. It can be fatal and often leaves survivors with brain damage.
Southwestern Michigan has experienced outbreaks of the disease in people and horses in the past, with the most recent outbreaks occurring in the early 1980s, mid-1990s and 2010. Health officials say it’s the first human case reported in Michigan since 2016, when three people were infected.
https://www.usnews.com/news/best-states/michigan/articles/2018-09-18/michigan-sees-human-eastern-equine-encephalitis-case

From WFAA, in Bedford, Texas
Alton Stockton faced a long, rocky road in reclaiming his life.
He still couldn’t use his right leg or left shoulder and he had to use a wheelchair.
“It kind of flashes in front of your eyes how quickly you can die,” Stockton said.
It was West Nile Neuroinvasive Disease. “Never really worried about it. Mosquitoes never bothered me,” he said. “As you start reading and searching about it, you go…holy! This is a nasty disease.”
https://www.wfaa.com/article/news/bedford-man-recovering-from-west-nile-refuses-to-quit/287-600234771

World Encephalitis Day – 02/22/18
Initiated by the Encephalitis Society of the UK, this date is set aside each year to raise awareness of this brain disorder. Encephalitis411.org was founded as a U.S. based nonprofit, to also raise awareness, and to directly impact those who live in the U.S.
Encephalitis411 encourages all survivors, caregivers, advocates, and medical professionals to wear RED on February 22nd, and to talk about encephalitis, and to watch our video series to learn more.
https://www.youtube.com/channel/UCNFulUgjUIXibvhZU_JDqwA

Neuroimmunology
Here’s a link to a recent webinar on the emerging field of neuroimmunology by Dr. Amanda Piquet.
https://www.mscenter.org/education/seminars-workshops/webinars/790-webinar-the-emerging-and-evolving-field-of-neuroimmunology

Neurofatigue
Most encephalitis survivors deal with fatigue. This is an interesting article.
http://www.braininjury-explanation.com/consequences/invisible-consequences/neurofatigue
Resources: Brain injury-explanation, Rehabilitationcentre de Hoogstraat, Cognitive Therapy (Joke Heins, Rose Sevat, Corine Werkhoven) nebasnsg.nl, stroke association of The Netherlands, The rehab group ABI webportal

Respite care notebook for parent caregivers of children
Here’s a link to a respite care notebook for parent caregivers of children with severe illness: https://globalgenes.org/raredaily/respite-notebook-intended-to-help-caregivers-take-a-break/

Members of a new UVA institute began planning for action to mitigate infectious disease risks
Microbiology professor Alison Criss and chemistry professor Linda Columbus co-lead UVA’s new Global Infectious Diseases Institute
https://news.virginia.edu/content/global-infectious-diseases-institute-poised-move-forward-after-first-meeting

Wendy Station’s story in Rare Revolution Magazine
Wendy is an encephalitis survivor, as well as Founder and President of Encephalitis Global.
http://www.rarerevolutionmagazine.com/blog/encephalitis-global-celebrates-world-encephalitis-day

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