IN THE NEWS
In Dane County, Wisconsin
Dane County resident dies with state’s first case of St. Louis encephalitis since 1981
“…only six human cases reported in the state since 1964 and no outbreaks ever reported.
Like West Nile, St. Louis encephalitis is spread to people through the bite of an infected mosquito. It is not transmitted person to person, the health department said.”
In Allegan, Michigan
Eastern equine encephalitis is one of the most dangerous mosquito-borne diseases in the U.S. It can be fatal and often leaves survivors with brain damage.
Southwestern Michigan has experienced outbreaks of the disease in people and horses in the past, with the most recent outbreaks occurring in the early 1980s, mid-1990s and 2010. Health officials say it’s the first human case reported in Michigan since 2016, when three people were infected.
From WFAA, in Bedford, Texas
Alton Stockton faced a long, rocky road in reclaiming his life.
He still couldn’t use his right leg or left shoulder and he had to use a wheelchair.
“It kind of flashes in front of your eyes how quickly you can die,” Stockton said.
It was West Nile Neuroinvasive Disease. “Never really worried about it. Mosquitoes never bothered me,” he said. “As you start reading and searching about it, you go…holy! This is a nasty disease.”
World Encephalitis Day – February 22nd
Initiated by the Encephalitis Society of the UK, this date is set aside each year to raise awareness of this brain disorder. Encephalitis411.org was founded as a U.S. based nonprofit, to also raise awareness, and to directly impact those who live in the U.S.
This year Encephalitis411 encourages all survivors, caregivers, advocates, and medical professionals to wear RED on February 22nd, and to talk about encephalitis.
Here’s a link to a recent webinar on the emerging field of neuroimmunology by Dr. Amanda Piquet.
Most encephalitis survivors deal with fatigue. This is an interesting article.
Resources: Brain injury-explanation, Rehabilitationcentre de Hoogstraat, Cognitive Therapy (Joke Heins, Rose Sevat, Corine Werkhoven) nebasnsg.nl, stroke association of The Netherlands, The rehab group ABI webportal
Respite care notebook for parent caregivers of children
Here’s a link to a respite care notebook for parent caregivers of children with severe illness: https://globalgenes.org/raredaily/respite-notebook-intended-to-help-caregivers-take-a-break/
Members of a new UVA institute began planning for action to mitigate infectious disease risks
Microbiology professor Alison Criss and chemistry professor Linda Columbus co-lead UVA’s new Global Infectious Diseases Institute
Wendy Station’s story in Rare Revolution Magazine
Wendy is an encephalitis survivor, as well as Founder and President of Encephalitis Global.