Plano, Texas, United States     |     Toll Free 1.833.411.3350

OUTREACH

Encephalitis411 was 7 years in the making before our launch in 2017. As of this year, we are celebrating more than 3 years and feel so fortunate for what we have accomplished!

Our mission is simply to improve the quality of life for those impacted by encephalitis. Our board is backed by highly esteemed and published medical faculty representing both neurology and infectious disease. Collectively, they have been involved in well over 7,000 encephalitis cases—both infectious and autoimmune—over the span of their careers. The doctors are from Johns Hopkins University Medical Center, the Department of Public Health in California, Brown University, Vanderbilt Medical Center and the University of California at San Francisco. We also have partnerships with many other well-known health organizations including the National Institute of Health, UT Southwestern Medical Center and the Centers for Disease Control.

Services provided by Encephalitis411 include:

  • A hotline for urgent and non-urgent needs for survivors, caregivers and healthcare professionals
  • In-person hosted meetings with healthcare speakers, free to anyone impacted with online meetings in the works
  • Medical faculty complex case reviews
  • Access to research
  • Social media engagement and encouragement
  • Research studies
  • Education for medical centers and medical schools
  • Referrals within the United States
  • A website with information and resources
  • Educational webinars
  • Awareness campaigns targeting the media
  • Membership in the World Encephalitis Day Alliance www.wedconf.org/about-weda

In the past year, Encephalitis411 celebrated some milestones, with outreach in these areas:

– Fielded nearly 200 hotline calls
– Handled several crisis situations, saving 1 life through intervention
– Hosted 150+ patients and caregivers at 4 meetings to give them access to healthcare professionals with encephalitis knowledge
– Commenced a research project with UCSF to leverage its advanced sequencing technology to study cerebral spinal fluid of 250 encephalitis patients to identify enteroviruses
– Reached 4,950 people at a half-day event via Facebook Live
– Launched a free service for treating physicians with hospitalized, complex patients to interact with Encephalitis411 medical experts
– Supported research trials with Johns Hopkins and UT Southwestern Medical Center
– Published 5 educational webinars on a newly established YouTube channel for Encephalitis411
– Reached more than 306,000 people via Facebook with educational and supportive messages
– One of our medical faculty, an assistant dean at Brown University, received a coveted award for “Teacher of the Year” by the Infectious Disease council

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