I’m Not the Me I Remember
A special report co-authored by Inspire and Encephalitis Global, Inc., documenting “life after encephalitis.”
Inspire provides a number of online communities for people affected by rare diseases, where patients and caregivers reach out to each other.
These connections are particularly profound in groups devoted to those affected by rare diseases.
Read more at https://www.inspire.com/static/inspire/reports/inspire-encephalitis-global-fighting-encephalitis.pdf
Experts by Experience – A compilation of patients’ stories
A special report by Inspire, developed in cooperation with the Stanford University School of Medicine
In early 2012, Inspire partnered with the Stanford University School of Medicine to provide a monthly column for the Scope medical blog.
This report, Experts by Experience, is made up of a year’s worth of columns from patients of all types and backgrounds. An underpinning of all the columns is the desire by patients for their doctors to truly hear them, and consider them a partner in the care process. Many patients want to share their stories, to help themselves and others. As Laura Haywood-Cory, a woman with a rare heart disorder, said, “As patients, we need to not expect perfection from our doctors until we achieve it in ourselves. And doctors need to give themselves permission to not know everything and to not feel threatened by empowered, educated patients.”
Read more at https://www.inspire.com/static/inspire/reports/inspire-stanford-experts-by-experience-report.pdf
Herpes Simplex Virus-1 Encephalitis in Adults: Pathophysiology, Diagnosis, and Management
Herpetic infections have plagued humanity for thousands of years, but only recently have advances in antiviral medications and supportive treatments equipped physicians to combat the most severe manifestations of disease. Prompt recognition and treatment can be life-saving in the care of patients with herpes simplex-1 virus encephalitis, the most commonly identified cause of sporadic encephalitis worldwide. Clinicians should be able to recognize the clinical signs and symptoms of the infection and familiarize themselves with a rational diagnostic approach and therapeutic modalities, as early recognition and treatment are key to improving outcomes.
Read more at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4965403
The Management of Encephalitis: Clinical Practice Guidelines by the Infectious Diseases Society of America
Guidelines for the diagnosis and treatment of patients with encephalitis were prepared by an Expert Panel of the Infectious Diseases Society of America. The guidelines are intended for use by health care providers who care for patients with encephalitis. The guideline includes data on the epidemiology, clinical features, diagnosis, and treatment of many viral, bacterial, fungal, protozoal, and helminthic etiologies of encephalitis and provides information on when specific etiologic agents should be considered in individual patients with encephalitis.
Read more at https://academic.oup.com/cid/article/47/3/303/313455