Videos/Books/Reports/Music

REPORT: "I’m Not the Me I Remember"

A special report co-authored by Inspire and Encephalitis Global, Inc., documenting "life after encephalitis."
Inspire provides a number of online communities for people affected by rare diseases, where patients and caregivers reach out to each other. 

These connections are particularly profound in groups devoted to those affected by rare diseases. 

https://www.inspire.com/static/inspire/reports/inspire-encephalitis-global-fighting-encephalitis.pdf 

BOOK: "Brain Wreck" by Becky Dennis

A survivor's story.

A must read for anyone who has witnessed the frustration of a mysterious illness. This is a story of determination and an unrelenting journey to save one’s mind. With humor and unabashed honesty, the author restores a shattered spirit while striving to be “normal.” 

http://bdbrainwreck.net/brain-wreck/

MUSIC: "Holdin' On" by EG Kight

A survivor's story.

An entertainer is diagnosed with encephalitis, and fights her way back to the stage. And the first song she was able to write during her recovery is a message of hope. "Holdin' On" is a song of triumph.
www.EGKightMusic.com/egs-story


BOOK: "Underwater" by Chris Maxwell

A survivor's story.
When Encephalitis, Brain Damage, and Epilepsy Change Everything
For Maxwell and the staggering number of people facing traumatic brain injuries, epilepsy, or other painful encounters, life is experienced through a different lens.

http://www.chrismaxwell.me/books/underwater

VIDEO: Ted Talk - Jennifer Brea - What happens when you have a disease doctors can't diagnose

In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat. 

https://www.youtube.com/watch?v=Fb3yp4uJhq0