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BOOKS/VIDEOS/REPORTS/MUSIC


BOOK: “The Rock Fairy”
by Wendy Spector-Steinmetz

This children’s book is a story about how the people in a little town are surprised when they wake up one day and find gorgeous painted rocks all around their neighborhood.
A portion of the proceeds support Encephalitis411.org in memory of the author’s niece, Nicole Sielor.

goo.gl/KuWepr

BOOK: “Brain Wreck”
by Becky Dennis

A survivor’s story.

A must read for anyone who has witnessed the frustration of a mysterious illness.
This is a story of determination and an unrelenting journey to save one’s mind.
With humor and unabashed honesty, the author restores a shattered spirit while striving to be “normal.”

http://bdbrainwreck.net/brain-wreck/

MUSIC: “Holdin’ On”
by EG Kight

A survivor’s story.

An entertainer is diagnosed with encephalitis, and fights her way back to the stage. And the first song she was able to write during her recovery is a message of hope.
“Holdin’ On” is a song of triumph.

www.EGKightMusic.com/egs-story

BOOK: “Underwater”
by Chris Maxwell

A survivor’s story.
When Encephalitis, Brain Damage, and Epilepsy Change Everything
For Maxwell and the staggering number of people facing traumatic brain injuries, epilepsy, or other painful encounters, life is experienced through a different lens.

http://www.chrismaxwell.me/books/underwater

VIDEO:
Ted Talk – Jennifer Brea
What happens when you have a disease doctors can’t diagnose

In this poignant talk, Brea describes the obstacles she’s encountered in seeking treatment for her condition, whose root causes and physical effects we don’t fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.

https://www.youtube.com/watch?v=Fb3yp4uJhq0

REPORT:
“I’m Not the Me I Remember”

A special report co-authored by Inspire and Encephalitis Global, Inc., documenting “life after encephalitis.”
Inspire provides a number of online communities for people affected by rare diseases, where patients and caregivers reach out to each other.  These connections are particularly profound in groups devoted to those affected by rare diseases.

https://www.inspire.com/static/inspire/reports/inspire-encephalitis-global-fighting-encephalitis.pdf

BOOK: “Brain on Fire: My Month of Madness” by Susannah Cahalan

An award-winning memoir and instant New York Times bestseller that goes far beyond its riveting medical mystery, Brain on Fire is the powerful account of one woman’s struggle to recapture her identity.
Cahalan is a news reporter at the New York Post whose award-winning work has also been featured in The New York Times. She lives in Jersey City, New Jersey.

https://www.amazon.com/Brain-Fire-My-Month-Madness/dp/1451621388/ref=sr_1_1?ie=UTF8&qid=1541392737&sr=8-1&keywords=brain+on+fire

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